Thursday 24 March 2016

In the photos, the inverted L incision with the staples visible, as well as photos in hospital and after discharge.



Miracles, healing

**Hullo Readers, this is a slightly modified post which I recently shared on my Facebook regarding my treatment. My apologies for not sharing anything lately on the blog for reasons beyond my control but the account below pretty much gives an update of what has been going on. I felt it was important to share it on the blog as I look forward to start writing regularly.

Thank you
Edmund

For sometime now, I have not posted an update about my treatment for a number of reasons - first there were alot of changes in the treatment plan, some of which were not only surprising but miraculous so to speak. Then came the surgery itself and the time required to heal, all of which didn't give me time to post something. As you might have been aware, previously I had travelled to India to seek treatment for the fast advancing liver cancer. 

It was then agreed by the team of Doctors at the time that the best treatment for me would be a liver transplant, given the state of my liver then (October & November 2015). Since I required a living donor, I travelled back home December 2015 and the process to identify a donor began. It was a rigorous process but as you might have followed, eventually my Sister Doreen was picked as my match. 

In January 2016, along with my wife Linda, we headed back to Bangalore to begin on the process that would lead to the transplant. In India, we embarked on dozens of other tests as well as the legal processes that one has to go through before a transplant is granted. We appeared before the government committee and answered all questions and got the clearance. The date for the procedure was already set. 

Basically what was remaining was the surgery. But as it was, there was a team of two senior doctors who work with the same hospital but in Chennai who would come to Bangalore to lead the surgery. So we met one of them, Dr Sanjay Govil, a very amiable man, who went ahead to ask me for the new scans i had done since I arrived. After looking at them thoroughly, he began asking questions, to me & the resident doctors. 

As we fumbled with answers, he quickly interrupted and said "from what I see, there is no reason to transplant this liver. It looks good, it appears you had good response to previous treatment which was done in October and November". We were in shock, my sister and wife looked at me in confusion. The resident Dr's similarly looked on in awe, having prepared us for the transplant all this time. 

Dr Sanjay apologised and informed us that it could have been an oversight (or it might have not been) on the side of the previous team to decide on transplantation, but it could also be that my liver has since improved and transplanting it was no longer viable but instead a resection would deliver the best results. 

He also went on to explain the advantages & disadvantages of both and indeed a liver resection seemed more plausible. However to be sure of the resectability of my liver, he ordered new scans to specifically check the volumes of the liver in terms of what would be cut off given the size of the cancerous tumour and what would remain. 

The scan indeed showed that I would remain with sufficient liver but just to be sure, a procedure called Portal vein embolisation was done to grow the normal part of the liver - the left lobe, and the same time shrink the right lobe which would be removed. At this point it was concluded that there will be no transplant. Doreen had survived the knife, which until this time, she had gracefully waited for. 

Like Isaac, she literally reached the sacrificial table and God intervened on the last minute. I will write a separate post about her. Fast foward, on the morning of March 4, I was wheeled into the theatre for resection. It's equally a major surgery. I would lose about 65 percent of my entire liver. 8 and a half hours later, I was wheeled out of the theatre to the ICU. 

Everything had gone well, as I peacefully slept. The deadly tumour, at 12.6cm, the size of a big mango, was removed. As Dr Sanjay would tell my wife Linda and my Sister Doreen, my liver looked even better on the inside. 7 days later I was discharged, On March 17, the stitches were removed and on March 18 the drain tube was also taken out. 

I am undergoing what the Doctors describe as an "excellent recovery". We will forever be thankful to the Government of Rwanda and everyone else that has supported us thus far. Our employers and respective families have been forever supportive. 

Our thanks to all the Doctors at BGS Global Hospital led by Dr Sanjay, Dr Suresh, Dr Raghavendra and Dr Uthappa to mention but a few. To be honest it was a coordination between different teams. Our sincere thanks also go to the previous team led by Dr Sonal Asthana. We will forever be grateful to all of you,

Our thanks to the nurses who ensured regular care on a daily basis. We would also like to extend our thanks to the Dr's back home at King Faisal Hospital-including Dr Pacific Mugenzi, Dr Emmanuel Rudakemwa and Dr Etienne Amendezo as well as senior doctors who sit on the Medical Referral Board. Our thanks to Dr Segni Mekonnen who was the first to spot the tumour.

Above all, God has manifested Himself throughout this process. At this rate, in a matter of days we will be back home with Leona and Laura. The fight remains on with a number of follow ups needed but all in all we thank God the Almighty